Acoustic Neuroma

Be kind, for everyone you meet is fighting a great battle - Philo of Alexandria

Sunday, December 18, 2005

Sunday Evening Dec. 18th

By the time I arrived, Greg had walked the hall four times and managed to get into his own pajamas. He was also off his drip - which means he has to start eating more, even if he doesn't feel like it. He was very ready for his first shower (his head stayed dry of course), and so walked down the hall again with me. I was really impressed that he made it all the way through the shower (of course he was able to sit for it all) and then to walk straight back, because even sitting through a shower takes a lot of energy (speaking as one who usually has to rest after her own!) -- oh, the many daily tasks we take for granted! Greg then slept for a bit, but later was finally able to speak on the phone to his parents. I know this was great for them all. Greg couldn't speak long, and he was exhausted again afterwards (even *listening* to me speak on the phone exhausts him, his sensitivity to any sensory input is still so very strong), but especially as his speaking is so much better today it was great that they could talk.

After yet another rest, he wanted to shave -- he did a pretty good job too. So in general he is looking *so* much better. Also, shaving meant looking in the mirror -- something he intentionally avoided doing until now. I did not ask him what he thought, knowing he would tell me when he was ready. Later he told a visitor that he had done this, and that it had not been as bad as he feared. He sounded quite positive. And indeed, he seemed to get a crazy burst of energy when this visitor came, and he chatted away for quite some time. Occasionally a bit disjointed or even slightly bizarre -- but he is still on morphine! It was quite amazing really. He was very tired for the rest of the evening, but in fairly good spirits too, exercising numerous attempts at humor.

Throughout the day he kept coming up with random tasks that need to be done at home, and of things he would like to Sharon to buy, and he even tried drawing a diagram for the computer's broadband set up that yet needs to happen. Neither Sharon nor I could make much of the diagram (!) but that could be partially due to the fact that we are two literature/theology majors, who are used to relying on our engineer husbands for comprehension of such things. But what was really important was that Greg had grabbed a pen and paper for the first time, without stopping to think about it, and had scribbled away.

So, as expected after I had processed the shock of that morning phone call, it was a really good day for Greg. (He can't even ring out from the phone in his room so I can only imagine what the poor nurses thought when he was insisting at 8:30am that he must use their phone to ring for another pillow!) Each day he continues to improve in leaps and bounds, even as the day progresses. Please keep wisdom and self-control for Greg in your thoughts and prayers, for he needs to find that balance of determination at progress, and not pushing so hard that it actually threatens regress. And only he will be able to stop himself from "overdoing it".

Each morning he wants to know who has left a message, who has sent a card. So please be encouraged that even if you don't hear back from me, Greg hears of your calls or cards and they encourage him. Just today he discovered that he is allowed to receive text messages on his cell phone in the hospital, although we had been told before that the phone had to be off at all times. So if you do know how to text, please feel free to do so, because he will be able to turn on the phone and read them now -- maybe just best that no one actually rings on the cell phone to talk on it between 10am and 8pm French time.

Tomorrow we will see the neurosurgeon again, and will have more news. Each day we hear of more of you who are following the blog, and this too really makes Greg feel so much *not* alone in his day-by-day journey. We have heard that some of you have left "comments" messages, and he is so eager to read them! Each little thing for him to look forward to is no little thing at all. So with many, many thanks, for your presences and care, until tomorrow with its news,
Kirstin (much fortified by Sharon Jebb's excellent lentil soup!)

10 Comments:

Anonymous Anonymous said...

The last two blogs have been sooo encouraging! It is so great to hear of Greg's progress, and of his wonderful spirit. As always, you are greatly in my prayers.

12:36 am  
Anonymous Anonymous said...

Dear Kirstin,

What fantastic progress and such a gutsy fighting performance from Greg! We are so pleased to hear his determination and courage have returned in part - just don't let him on a bike for a while! We pray for strength and patience for you both in the coming days and thank God for you. Thank you for sharing your daily reports with us - it makes us feel not quite so far away!
With love and prayers,
The Harts.

12:52 am  
Anonymous Anonymous said...

Kirstin and Greg,

We are following the blog as well with great joy. It's great to hear that Greg is doing so well, and it's not surprising that he's working harder than expected on his recovery. Know that people as far afield as Berkeley are eagerly awaiting reading the blog each day to find out how he's doing.

-Dave and Chelle (in Berkeley, CA)

1:51 am  
Anonymous Anonymous said...

Dear Greg;
Greetings from Ottawa at this wonderful time, just before the birth of our Savior. We have been following your progress very closely, thanks to your e-mails to Kara, who is keeping our family informed daily. Thank God for answering my prayers through your long hours of surgery. Kirsten, you are one strong, courageous woman. Going through something like this brings you very close and -as Kara says- is making you realize what's important in life. Health is taken for granted until all of a sudden you don't have it. You have been dealing with pain for all too long already, but you are strong and full of hope, that there will be - God willing- better days ahead. Keep your positive thinking, and celebrate this Christmas thankful to God. He will make everything right! God bless you in the New Year.
Now and always, HELGA

3:22 am  
Anonymous Anonymous said...

Dear Kirsten & Greg,
We have been thinking of you daily, and reading about your progressive recovery. It is going to be a very slow and arduous one, but with improvements daily as we are finding out through Kirsten's reports. With what we have read up to now, you are a very strong, brave and courageous human being. You are in our thoughts and prayers. It brings back memories of when I had brain surgery at the Montreal Neurological Hospital in Montreal in 1976. It was to have scar tissue removed, which was causing me to have seizures and grand mals - epilepsy. It was a very difficult decision to make, as I was only 20 years old at the time, but to this day, I have had no regrets. It gave me a new outlook on life. While in hospital, my mom gave me a card of encouragement - and I would like to share with you, the poem in this card which I have never been able to let go of. It goes like this:
"Burdens are Things GOD Turns into Wings"
"Oh, for the wings of a bird", we cry,/ To carry us off to an untroubled sky / Where we can dwell untouched by care / And always be free as a bird in the air - / But there is a legend that's very old,/ Not often heard and seldom told,/ That once all birds were wingless, too, / Unable to soar through the skies of blue-/ For, while their plumage was beautifully bright / And their chirping songs were liltingly light, / They, too, were powerless to fly, / Until one day when the Lord came by /And laid at the feet of the singing birds / Gossamer wings as He spoke these words: / "Come take these burdens, so heavy now, / But if you hear them you'll learn somehow, / That as you wear them they'll grow light, / And soon you can light yourself into flight" - / So folding the wings beneath their hearts / They lifted themselves and found with delight, / The wings that were heavy had grown so light - / So let us, too, listen to God's wise words, / For we are much like the "wingless birds," /And if we would shoulder our daily trials, / And learn to wear them with sunny smiles, / We'd find they were wings that God had sent / To lift us above our heart's discontent - / For The Wings that Lift us out of despair, / Are made by God from the wight of care, / So whenever you cry for the "wings of a bird" / Remember this little legend you've heard, / And let God give you a heart that sings / As He turns your burdens to "silver wings."/
"To Brighten Your Hours"
When trouble comes as it does to us all, / We feel so helpless and lost and small, / Our world falls apart and in despair / We see no beauty anywhere - / But behind the clouds the sun is shing / For every cloud has a "silver lining."

Greg, keep your "spirits high." We're sending you many good wishes and hope you'll soon be well and strong, (and back in your new home! Congratulations!) God bless,
- Marianne (Alex's sister), Gilles, Eric & Jessica (Ottawa)

4:27 am  
Anonymous Anonymous said...

Dear Kirstin,
I don't want to use the emergency phone, but I wanted to let you know how encouraged we are by Greg's progress, and how deeply grateful. We are praying for you both daily (not just once, tons of times) and think about you so much. The letters you've been writing are so inspiring and it's such a privilege that you share this journey with all of us. You and Greg have so much determination-- we've always known that, from the first canoe ride... -- and this is yet one more manifestation of that, and of your courage and grace. We send you much love, and our prayers, Val and Kris

5:05 am  
Blogger Canadi-Ann said...

Hello from Toronto!

I'm praying for you, and requesting the staff in the IV office to pray for you too.

Glad to hear that Greg's improving, with solid determination it seems.

I've requested to be added to your skype list - can't wait to talk to you over the internet for free!!!

Have a wonderful, blessed Christmas.

Ann

9:38 am  
Anonymous Anonymous said...

Dearest Greg and Kirstin,
My heart sings each day to hear of Greg's progress and his gutsy fighting spirit. It was so wonderful to talk on the phone for the first time and hear your voice, Greg. We are immensely proud of all you've achieved this week - it's a testimony to who you are. God's speed, Love Mum & Dad

8:45 pm  
Anonymous Anonymous said...

Fantastic progress, keep it up. I was going to do 'the bike' bit but someone beat me to it.
The Small's

9:48 pm  
Anonymous Anonymous said...

Rafiki! So good to hear that you're in fine fighting form! These last two posts have been very encouraging. I have been sharing your news with some folks at Ascension who know you and we prayed for you, Kirstin and your family yesterday during the service. It was the annual Christmas pagaent, and my daughter Zoe, age 3, decided to be the "lost sheep" who had to wander over while I was playing piano to tell me "Daddy! I baahed! I baahed!". Totally threw me off during the song, but it's funny to think of it now. Greg, hang in there! Pace yourself as this is going to take some time, but keep on keeping on! You are "soooo" not alone in this. Courage! dh

11:25 pm  

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